Today we have moved to the rehab floor - 4th floor. Ally is getting OT, PT, ST 2x each day for 45 minutes each session. She is a detrimined girl. With determination comes stubborness. Now I'm not sure where she gets this stubborness but it couldn't be from me, must be her dad...LOL ; ). SMA syndrome causes both apathy and impulsivity. So Ally either really is into the rehab or is really not into rehab. There is not an in between. Because of the impulse issue, one of us will need to be here at the hospital with Ally 24/7. She doesn't realize some actions may injure her. Just getting out of bed without assistance is dangerous because of the weakness on her right side. So Randy and I must be here to help her. She hates it. The therapists are talking about a picture board so she can point to the things she wants. Randy and I keep joking about a box that says "GO AWAY, insert name!!!!" Ally is very independant. She can't wait to get that back.
Dana
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2 comments:
With Ally's determination and positive attitude, there's nothing she won't be able to do. It may take her some time, but I know she'll be able to make a full recovery. We're all praying for that day.
Ally, keep up the strong work. You're loved and respected. You're a true example to all of us who sometimes forget how easy things are for us.
We look forward to seeing your smiling face out of the hospital with a full recovery in the very near future.
Love ya!
Sandi & Ashley
Ally, Dana, Randy,
All of you have been in our thoughts and prayers. Ally, we know you will get through this because you are a wonderful person. To Mom and Dad, stay strong, when some days are tougher than others, know that, our prayers will help hold you up.
Blessings,
Sandy and Tim
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