Seizures are down to a dull roar..

Allyson is having less seizures the past day or two. She was feeling well enough to travel to Hamilton, Ohio last night for a Rainbow Installation. I'm glad because she had a good time and got to see some of her Rainbow friends. We are hoping and praying for a better week this week. She missed Thursday and Friday at school. She has become an expert in make up work.

Randy had a great sermon on HOPE today. He showed the clip from Apollo 13 when they lost contact as the astronauts were entering the atmosphere. There was a 4 minute lapse of time in which the nation watched and waited to see if they made it thru. Even though everyone in the congregation knew the answer, we all seemed to hold our breath. Our family is holding their breath and it's been a lot longer than 4 minutes. I have faith in God. I trust him wholly. I hope that His plan is the same as mine. that is all I can hold on to right now. My faith and hope..

Dana

Just a reminder, Allyson is allowed to have visitors at the hospital. Several people asked.

Not a good night...

Last night was a tough one for Allyson. She came into our room around 1 am saying she felt weird. I told it would be OK. She said it didn't feel like the normal seizures. We had her climb into bed between us. During the rest of the night, she had about 4 more seizures. The seizures were similar but were giving her an aura. this aura would frighten her. It's like the feeling when you know something bad is going to happen, but that feeling repeats with every seizure. it's exhausting.

She stayed home from school. We were hoping not to miss any school until the surgery. Oh well.

Ally says she is feeling better tonight. We'll see tomorrow....

Dana

Feeling good this week!

Allyson has been feeling pretty good this week. She managed to stay at school every day this week. She does have a sinus infection that she is taking meds for but other than that she is back to her old self. She actually wants to go out and do things. Last night she went to the winter formal. She looked beautiful. Of course, I'm not bias at all.

More to come.

Dana

We have a Date.....

We received a call from the neuro-surgeon's office today. She apoligized for the long wait. There was a mix up with Allyson's file and it was set aside.

Allyson's surgery process will begin on March 31, 2008. On this day they will place the electrodes directly onto her brain. These electrodes are similar to an EEG but done inside the skull. This test will verify the doctors are in the correct place. Then on April 7, 2008, the actual brain re-section will be done. Allyson will be in the hospital from March 31 - April 12, at least.

The good news in all of this is that Allyson will be able to take her OGT's at the beginning of March. This has been a point of contention with Allyson. When we thought the surgery would be in 2007, she hopefully would have been back in time for the test. With each delay, Allyson worried she wouldn't be able to take the tests. This last delay was just long enough to avoid the tests all together. It seems strange but this makes the last delay good news.

Thank you for all your prayers and cards. They are most helpful.

More to follow when available....